Autism Speaks, the largest and most well known autism resource, has always been terribly problematic. Their mission statement speaks of hardship for caregivers and advocates for “curing” the world of the “global health crisis” that is autism. That is, until today.
This is their new shiny new mission statement:
“Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions,” reads the update. “Autism Speaks enhances lives today and is accelerating a spectrum of solutions for tomorrow.”
This is a huge step forward, that is if they put their money where their mouth is. A mere 4% of the A$ budget is directed towards family services. Only 4% goes to actually helping the families and individuals they advertise as so helpless and dire.
How will the 35% of their research budget now be distributed? Will their fear mongering fundraising language change? Will they acknowledge the many voices of adult autistics and stop implying that neurodivergence only occurs in childhood? That once an autist reaches adulthood and can speak for themselves, they no longer matter in the discussion about autism?
Maybe A$ is finally listening to what the #actuallyautistic community has been saying for ages. They do have a new president, recently announced the passing of one of their founding members, and appointed two autistic board members for the first time last December. Maybe they will be better. Maybe not. Time will tell.
Until then, check out these sites for your autism resources instead.
Parenting Autistic Children with Love and Acceptance
And for more information on why Autism Speaks is problematic:
Why I am Against Autism Speaks (and you should be, too)
There are several other fantastic resources on this topic within that link.